The last day in the chemo chair as a cancer patient. On Monday (3/2), Alex had her port removed and she officially stopped being a cancer patient! We were there early and she was supposed to go into the OR at 9:50am. True to form, at the last minute they realized that Alex wasn't the regular oncology kid and they needed a cardiology consult. The surgeons who remove ports are not the doctors that treat them week to week so they do not know the kids. Upon realizing Alex had a pace maker they worried that the while using a cauterizing knife to make the incision the pace maker might get "confused" by the electricity being used by the knife and stop pacing her so cardio had to come and make sure everything was ok. Once that happened, they went ahead and everything went smoothly. Her port was removed and she had her final bone marrow biopsy. She came home hours later and ran around the rest of the day. She is thrilled to be done and on Monday she self proclaimed herself to be a "super hero rockstar princess."
She tells everyone she is done with chemo and loves twirling her tiny hair which she says is like rapunzel's. Oh to be a kid... Where real and pretend have very blurry lines... How do I trap her in that world? In Alex world everything is made up of unicorns and princesses and everything sparkles, just like she does. 💖