This week is week one of a new cycle which of course means steroids and Alex turns into "grumps." Even after close to two years, everytime steroid week rolls around I am marveled at how steroids affects her - the 'roids turn her into a different kid. She wants a million different things and then nothing all at once. She wants one thing and then the next.. Constantly demanding something new.
Today, after 4 days on steroids she woke up, zipped down her footie pijama to show me her knees and tell me they hurt and she wanted the red medicine. The red medicine is oxycodone - it is so wrong that she has to ask for oxy or even knows what that is. She was a little shaky and said she wanted to watch Frozen on the couch so no school today and here we are on the couch watching Frozen which immediately makes her happy. She told me " you are sick too mama, sit on the couch too." Makes me sad to see her like this but she is happy now signing along and jumping off the couch everytime they sing to sing and dance right along with Anna and Elsa and of course Olaf!