This is week was the start of a new cycle which means steroids. The cardiologist wanted to monitor her heart closely to see if on steroids she was using the pace maker more. There is a theory that on steroid week she may need a higher heart rate but since her heart can't naturally pump faster he would need to adjust the pace maker to a higher heart rate on steroid week. The hope is that maybe this would make steroid week less miserable. This week she was incredibly fussy and needy when out of her comfort zone.
At home when she can do what she wants and gets what she wants on demand she has been happy. Outside it has been a different story and she has been all about daddy. Poor Trent doesn't get a break. She wants him to do everything!
So on top of steroids she had to deal with having all those wires and that little box attached to her for 24 hrs. I kept a onesie one so she wouldn't pull on the wires but the box would slip out so we added shorts to make it fool proof. We should know if there is any concluding data in the next week.
My sister and her kids are here with us so we are all enjoying the chaos. Four kids under one roof is loud but also so much fun!